Seven years is far too long to wait for an answer to a question about yourself or someone close to you. In order to prevent this from happening to everyone who has dystonia, we must work to educate the world about this rare disease.

An estimated 300,000 people in North America alone have dystonia, yet many people who have dystonia have been misdiagnosed with cerebral palsy, Parkinson’s disease, or another similar disorder. Only people who have been diagnosed with dystonia, their families and friends, and some of the top neurologists and doctors are aware of this disorder and what it really is.

Awareness about dystonia, especially among those in the medical profession, must be raised so that the thousands of people with dystonia do not have to suffer for so long to find out what it is that they have and what they can do about it.

If you want to read more about my struggle with dystonia, please visit my links page.

If you want to share your story with me, please contact me.